For this year’s Bar-A-Thon I have decided to chronicle my ongoing battle with Thyroid and decided to call it ThyroScare. I guess you could call it a marathon of sorts to overcome this disease. This post is dedicated to all the specialist that I ended up meeting in due course.
Read the second post in this series here
After the call to the cardiologist, I was told to start Eltroxin 25 mg as my TSH was 238 (normal range is 0.4-5.0). Also was started on a diuretic to allow the water to be flushed out and told to make an appointment with him as there was water around my heart. Ok my heart plummeted to hear that but she assured me all was well.
Leviothyroxine (Eltroxin) is the drug used to treat under active thyroid gland and it basically helps in producing more T4 which in turn helps to make T3 – both are thyroid hormones. As soon as the T4 levels reach normality with it, TSH levels come down.
World over the doctors prescribe Eltroxin in multiples of 25 mg and slowly increase the dosage till a normalcy is achieved in the TSH levels. The flip side of this drug is the weight gain which begins simultaneously.
There is a disagreement between several experts over this being the best drug to prescribe as in some cases T4 doesn’t convert to T3; instead it turns into RT3 or reverse T3 which leads to several other complications.
In fact thyroid disorders seem to be the least researched, leading to several medical arguments.
There are now specialists who prescribe NDT or natural desiccated thyroid which is made from the thyroid glands of a pig. This contains all of the thyroid hormones – T4, T3, T2 and T1. Mainstream doctors havent started to deal with this drug due to lack of research but world over several people who have begun this therapy, are claiming to be doing better than with Eltroxin.
The third “specialist” – The cardiologist!
Four days later, I went in for an Echogram that confirmed I had Pericardial effusion or water around the heart. Doc confirmed it was a lot of water and he prescribed meds for 3 months. After which if the water didn’t go down, they would need to aspirate it with a needle or surgery if that also doesn’t help.
Gulp! Gulp! Gulp!
The fourth “specialist” – The Gastro!
He also recommended I see a Gastro specialist as the bloating was most unusual. I promptly went to see him but he gave me a clean bill of gastro health after a round of tests and referred me onto an Auto immune specialist.
The fifth “specialist” – The Auto-immunologist!
The Auto immune doc put me on folic acid as he saw a deficiency from some tests he prescribed and referred me to a hematologist as my low levels of haemoglobin perplexed him. I assured him I was anemic since childhood and a level of 9 was way beyond expectations.
The sixth “specialist” – The Hematologist!
Off I went to see the blood doctor who turned out to be this really jovial guy with ample time on his hands. Hearing my entire case, he called over his colleague and they both got into research mode as they declared me to be “most interesting”. I am glad to amuse you both docs.
Some more blood tests later, they found out the cause for my low haemoglobin which had been also the cause of my enlarged spleen all my life and prescribed a supplement for it.
Ummmm can we get back to the thyroid now please.
Oh that – yeah go see an Endocrinologist.
Two months of half a dozen specialist and over 30,000 spent in tests, I had had it! I was exhausted running around on my own and decided to meet and talk to others who have this disease and what they have to say. To my astonishment, I found over a dozen in my close circle of friends and family – all of whom were perplexed by mine as they had never ever heard of 238 types of level. Normally it shot up to 9 or so and were declared to be thyroid patients.
Gulp! Gulp! Gulp!
You may well be wondering why the hell didnt I just go to the Endocrinologist? I did try to find one and came to realise that most of them specialise in Diabetes and PCOD – both streams provide a lucrative income. My search for a reliable specialist in the field of Thyroid, especially hypothyroidism continues and I would love to hear from you if you are referring to one.